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living in the labyrinth diana friel mcgowin: Living in the Labyrinth Diana Friel McGowin, 1994-10-01 Living In The Labyrinth is the story of how one woman found the strength and the courage to cope with a devastating disease that has afflicted five million Americans. Far from being an exercise in self-pity or a standard autobiography, this is an unflinching and ultimately uplifting look at a debilitating illness from the inside out. “Somewhere there is that ever-present reminder list of what I am supposed to do today. But I cannot find it. I attempt to do the laundry and find myself outside, in my backyard, holding soiled clothes. How did I get here? How do I get back?” Only forty-five when she first began to struggle with the memory lapses and disorientation that signal the onset of Alzheimer’s, Diana Friel McGowin has written a courageous, stirring insider’s story of the disease that is now the fourth leading killer of American adults. Diana’s personal journey through days of darkness and light, fear and hope gives us new insight into a devastating illness and the plight of its victims, complete with a list of early warning signs, medical background, and resources for further information. But Diana’s story goes far beyond a recounting of a terrifying disease. It portrays a marriage struggling to survive, a family hurt beyond words, and a woman whose humor and intelligence triumph over setbacks and loss to show us the best of what being human is. “A stunner of a book . . . it takes the reader on a terrifying but enlightening journey.”—San Antonio News Express “Touching and sometimes angry . . . a poignant insider’s view.”—The Cincinnati Enquirer |
living in the labyrinth diana friel mcgowin: Living in the Labyrinth Diana Friel McGowin, 2011-08-24 Living In The Labyrinth is the story of how one woman found the strength and the courage to cope with a devastating disease that has afflicted five million Americans. Far from being an exercise in self-pity or a standard autobiography, this is an unflinching and ultimately uplifting look at a debilitating illness from the inside out. “Somewhere there is that ever-present reminder list of what I am supposed to do today. But I cannot find it. I attempt to do the laundry and find myself outside, in my backyard, holding soiled clothes. How did I get here? How do I get back?” Only forty-five when she first began to struggle with the memory lapses and disorientation that signal the onset of Alzheimer’s, Diana Friel McGowin has written a courageous, stirring insider’s story of the disease that is now the fourth leading killer of American adults. Diana’s personal journey through days of darkness and light, fear and hope gives us new insight into a devastating illness and the plight of its victims, complete with a list of early warning signs, medical background, and resources for further information. But Diana’s story goes far beyond a recounting of a terrifying disease. It portrays a marriage struggling to survive, a family hurt beyond words, and a woman whose humor and intelligence triumph over setbacks and loss to show us the best of what being human is. “A stunner of a book . . . it takes the reader on a terrifying but enlightening journey.”—San Antonio News Express “Touching and sometimes angry . . . a poignant insider’s view.”—The Cincinnati Enquirer |
living in the labyrinth diana friel mcgowin: People with Dementia Speak Out Lucy Whitman, 2015-09-21 In this book, contributors from a wide range of backgrounds reflect on their experiences of living with dementia, and what impact the condition has had on their lives. This timely collection offers a much-needed opportunity to hear the voices of people with dementia, as they demystify the condition and break down stigma and stereotypes. |
living in the labyrinth diana friel mcgowin: Help for the Caring Brenda Parris Sibley, 2002 This much-needed bibliography and filmography brings together lists of books about Alzheimer's and caregiving, including biographies, poetry, and even fiction, as well as in instructional and dramatic films. |
living in the labyrinth diana friel mcgowin: Caring for Red Mindy Fried, 2016-09-13 Eric Hoffer Book Award Finalist, 2018 Caring for Red is Mindy Fried's moving and colorful account of caring for her ninety-seven-year-old father, Manny--an actor, writer, and labor organizer--in the final year of his life. This memoir chronicles the actions of two sisters as they discover concentric circles of support for their father and attempt to provide him with an experience of engaged aging in an assisted living facility. The story is also that of a daughter of a powerful and outspoken man who took risks throughout his life and whose political beliefs had an enduring impact on his family. (After Manny was called before the House Un-American Activities Committee, he was blacklisted and his family was shunned.) As an actor, Manny was affiliated with Elia Kazan's Group Theatre and the Federal Theatre Project. He did Shakespeare, Chekhov, and Ibsen, and played everything from the tormented father in Arthur Miller's All My Sons to an infant in a baby carriage in Thornton Wilder's Infancy, from the Rabbi in Fiddler on the Roof to--poignantly for this book--the role of Morrie in Tuesdays with Morrie. As she devotes herself to caring for her dying father, Mindy grapples anew with the complexity of their relationship. She questions whether she can be there for him and how to assert her own voice as her father's caregiver in his last days. |
living in the labyrinth diana friel mcgowin: Voices of Mental Health Martin Halliwell, 2017-10-02 This dynamic and richly layered account of mental health in the late twentieth century interweaves three important stories: the rising political prominence of mental health in the United States since 1970; the shifting medical diagnostics of mental health at a time when health activists, advocacy groups, and public figures were all speaking out about the needs and rights of patients; and the concept of voice in literature, film, memoir, journalism, and medical case study that connects the health experiences of individuals to shared stories. Together, these three dimensions bring into conversation a diverse cast of late-century writers, filmmakers, actors, physicians, politicians, policy-makers, and social critics. In doing so, Martin Halliwell’s Voices of Mental Health breaks new ground in deepening our understanding of the place, politics, and trajectory of mental health from the moon landing to the millennium. |
living in the labyrinth diana friel mcgowin: The Reminiscence Skills Training Handbook Ann Rainbow, 2018-10-24 This easy-to-use guide provides an accessible workbook for reminiscence skills training. It includes: information on the history and definition of reminiscence work; the value of the reminiscence experience to older people and their carers as well as practical ideas and suggestions on how to use reminiscence in a beneficial and therapeutic way; how to set up, run and maintain group and individual reminiscence activities; training points and training activities for each section to enhance understanding by making links with the personal experience of the reader; and, emphasis on the role of reminiscence work in the social and emotional care of ethnic minority elders, people with dementia and older people who have been bereaved. This handbook will not only help to promote reminiscence work but also enhance everyday communication between carers and older people. |
living in the labyrinth diana friel mcgowin: The Diseased Brain and the Failing Mind Martina Zimmermann, 2020-06-25 This book is available as open access through the Bloomsbury Open programme and is available on www.bloomsburycollections.com. It is funded by The Wellcome Trust. The Diseased Brain and the Failing Mind charts changing cultural understandings of dementia and alzheimer's disease in scientific and cultural texts across the 20th Century. Reading a range of texts from the US, UK, Europe and Japan, the book examines how the language of dementia – regarding the loss of identity, loss of agency, loss of self and life – is rooted in scientific discourse and expressed in popular and literary texts. Following changing scientific understandings of dementia, the book also demonstrates how cultural expressions of the experience and dementia have fed back into the way medical institutions have treated dementia patients. The book includes a glossary of scientific terms for non-specialist readers. |
living in the labyrinth diana friel mcgowin: The Dementia Care Workbook Morris, Gary, Morris, Jack, 2010-02-01 The Dementia Care Workbook is a workbook style text on dementia, aimed at pre-registration level students training to be Mental Health or Adult nurses. By using reflective exercises and other tools, the book is designed to help readers get to grips with the key issues of dementia care, with a focus on the felt experience for all involved. Topics covered include: the felt experience (the patient), the felt experience (the carer/family), attitudes to caring, environment of care, the person, engagement, ways of working, empowerment and the future. |
living in the labyrinth diana friel mcgowin: Alzheimer's Early Stages Daniel Kuhn, 2013-03-15 The third edition of Alzheimer’s Early Stages offers new research findings, treatment approaches, and information on the three key areas of Alzheimer’s disease: medical aspects, day-to-day care, and care for the caregiver. Daniel Kuhn seeks to replace fear with knowledge. With information on the progression of the disease, potential non-drug means of treatment, the changing world of the diagnosed individual, legal and financial planning, and maintaining physical and mental health for the caregiver, the book provides detailed guidance and advice while leaving room for adapting to the individual situation. |
living in the labyrinth diana friel mcgowin: Entranced by Story Hugh Crago, 2014-04-24 We live in a world of stories; yet few of us pause to ask what stories actually are, why we consume them so avidly, and what they do for story makers and their audiences. This book focuses on the experiences that good stories generate: feelings of purposeful involvement, elevation, temporary loss of self, vicarious emotion, and relief of tension. The author examines what drives writers to create stories and why readers fall under their spell; why some children grow up to be writers; and how the capacity for creating and comprehending stories develops from infancy right through into old age. Entranced by Story applies recent research on brain function to literary examples ranging from the Iliad and Wuthering Heights to Harold and the Purple Crayon, providing a groundbreaking exploration of the biological and neurological basis of the literary experience. Blending research, theory, and biographical anecdote, the author shows how it is the unique structure of the human brain, with its layering of sophisticated cognitive capacities upon archaic, emotion-driven functions, which best explains the mystery of story. |
living in the labyrinth diana friel mcgowin: Time and Memory Jo Alyson Parker, Paul André Harris, Michael Crawford, 2006-09-01 The nature of time has haunted humankind through the ages. Some conception of time has always entered into our ideas about mortality and immortality, and permanence and change, so that concepts of time are of fundamental importance in the study of religion, philosophy, literature, history, and mythology. On one aspect or another, the study of time cuts across all disciplines. The International Society for the Study of Time has as its goal the interdisciplinary and comparative study of time. This volume presents selected essays from the 12th triennial conference of the International Society for the Study of Time at Clare College, Cambridge. The essays are clustered around themes that pertain to the constructive and destructive nature of memory in representations and manipulations of time. The volume is divided into three sections Inscribing and Forgetting, Inventing, and Commemoration wherein the authors grapple with the nature of memory as a medium that reflects the passage of time. |
living in the labyrinth diana friel mcgowin: Jewish Wisdom for Growing Older Rabbi Dayle A. Friedman, MSW, MA, BCC, 2015-02-05 Offers inspiration and guidance to help you make greater meaning and flourish amid the challenges of aging. It taps ancient Jewish wisdom for values, tools and precedents to frame new callings and beginnings, shifting family roles, and experiences of illness and death. For seekers of all faiths; for personal use and caregiving settings |
living in the labyrinth diana friel mcgowin: Jewish Pastoral Care 2/E Rabbi Dayle A. Friedman, MSW, MA, BCC, 2013-01-30 The first comprehensive resource for pastoral care in the Jewish tradition—and a vital resource for counselors and caregivers of other faith traditions. The essential reference for rabbis, cantors, and laypeople who are called to spiritually accompany those encountering joy, sorrow, and change—now in paperback. This groundbreaking volume draws upon both Jewish tradition and the classical foundations of pastoral care to provide invaluable guidance. Offering insight on pastoral care technique, theory, and theological implications, the contributors to Jewish Pastoral Care are innovators in their fields, and represent all four contemporary Jewish movements. This comprehensive resource provides you with the latest theological perspectives and tools, along with basic theory and skills for assisting the ill and those who care for them, the aging and dying, those with dementia and other mental disorders, engaged couples, and others, and for responding to issues such as domestic violence, substance abuse, and disasters. |
living in the labyrinth diana friel mcgowin: Hearing the Voice of People with Dementia Malcolm Goldsmith, Malcolm Clive Goldsmith, 1996 Based on research into ten key areas relevant to dementia, this book offers practical advice and suggestions. |
living in the labyrinth diana friel mcgowin: Jewish Visions for Aging Rabbi Dayle A. Friedman, MSW, MA, BCC, 2011-10-20 Discover the Jewish tradition’s insights on growing older and eldercare in this groundbreaking resource—the only one of its kind! “Judaism can be [tremendously] powerful for those searching for new meaning and roles, for perspective on life’s profound questions, and for solace amid the inevitable loss and change of later life.... It is time to forge a new paradigm for the Jewish response to aging.” —from the Introduction From the rapidly changing retirement years to the sometimes wrenching challenges of dementia and chronic illness, spiritual questions and needs among today’s elders and caregivers are central. This rich resource probes Jewish texts to offer solutions and suggestions for finding meaning, purpose and community within Jewish tradition. With timely—and timeless—wisdom, this rich resource probes Jewish texts, spirituality and observance, uncovering a deep, never-before-realized approach to responding to the challenges of aging with a refreshing and inspiring vitality. The insights—spanning textual analysis and spiritual and pastoral perspectives—provide practical guidance in spiritual care and communal programming to dynamically engage and serve elders and their families. Accessible and honest, Jewish and non-Jewish clergy, chaplains, elder- and healthcare professionals, volunteers and family members will find this guide an invaluable asset as they explore how to empower elders and their families through daily spiritual and communal life. |
living in the labyrinth diana friel mcgowin: Forget Memory Anne Davis Basting, 2009-07-01 Memory loss can be one of the most terrifying aspects of a diagnosis of dementia. Yet the fear and dread of losing our memory make the experience of the disease worse than it needs to be, according to cultural critic and playwright Anne Davis Basting. She says, Forget memory. Basting emphasizes the importance of activities that focus on the present to improve the lives of persons with Alzheimer's disease and other dementias. Based on ten years of practice and research in the field, Basting’s study includes specific examples of innovative programs that stimulate growth, humor, and emotional connection; translates into accessible language a wide range of provocative academic works on memory; and addresses how advances in medical research and clinical practice are already pushing radical changes in care for persons with dementia. Bold, optimistic, and innovative, Basting's cultural critique of dementia care offers a vision for how we can change the way we think about and care for people with memory loss. |
living in the labyrinth diana friel mcgowin: The Family Experience of Dementia Gary Morris, Jack Morris, 2020-12-21 Dementia not only affects the person presented with the diagnosis, but their family and friends too. This book provides practitioners with strategies to support the whole family and understand their dementia journey both pre- and post-diagnosis. This is facilitated through a series of activities and reflective prompts. There is also a dedicated chapter offering structured exercises for health and social care practitioners and students. The book introduces the Lawrence family, where Peter has been diagnosed with dementia, and provides perspectives from each family member, allowing practitioners to become acquainted with the lived experience of everyone involved. The reflective questions allow readers to become actively engaged to maximise their knowledge and understanding, and to better contextualize what the dementia experience feels like for family and friends. With its focus on the all-important lived experience of the whole family during the diagnostic process and beyond, this is essential reading for any practitioner working with people with dementia. |
living in the labyrinth diana friel mcgowin: Dying with Open Eyes Jennie Swanson Dincecco, 2005 All proceeds of Dying With Open Eyes will be donated to the Alzheimer's Association. |
living in the labyrinth diana friel mcgowin: Geropsychiatric and Mental Health Nursing Karen Melillo, Susan Houde, 2010-10-25 A new and updated version of this best-selling resource! Jones and Bartlett Publisher's 2011 Nurse's Drug Handbook is the most up-to-date, practical, and easy-to-use nursing drug reference! It provides: Accurate, timely facts on hundreds of drugs from abacavir sulfate to Zyvox; Concise, consistently formatted drug entries organized alphabetically; No-nonsense writing style that speaks your language in terms you use everyday; Index of all generic, trade, and alternate drug names for quick reference. It has all the vital information you need at your fingertips: Chemical and therapeutic classes, FDA pregnancy risk category and controlled substance schedule; Indications and dosages, as well as route, onset, peak, and duration information; Incompatibilities, contraindications; interactions with drugs, food, and activities, and adverse reactions; Nursing considerations, including key patient-teaching points; Vital features include mechanism-of-action illustrations showing how drugs at the cellular, tissue, or organ levels and dosage adjustments help individualize care for elderly patients, patients with renal impairment, and others with special needs; Warnings and precautions that keep you informed and alert. |
living in the labyrinth diana friel mcgowin: Telling Tales about Dementia Lucy Whitman, 2010 In this book, thirty carers from different backgrounds and circumstances share their experiences of caring for a parent, partner or friend with dementia. This unique collection of personal accounts will be an engaging read for anyone affected by dementia in a personal or professional context, including social workers, practitioners and care staff. |
living in the labyrinth diana friel mcgowin: Beyond the Great Forgetting Patrick Gruener, 2022-08-29 Drawing on a selection of carefully curated autobiographical and fictional portrayals of the dementia experience, this book gives voice to some of the most pressing ethical issues that commonly arise in the context of a dementing disorder, and calls attention to various forms of narrative resistance in contemporary American literature on early-onset Alzheimer’s disease (AD). Based on the premise that the current public discourse on AD is largely dominated by an anxiety and fear-promoting conception of the illness, this multilayered inquiry strives to look beyond the widespread horrors of forgetting and loss in AD, and, in doing so, attempts to give a better, more accurate, and more balanced impression of what it means to be living with such a diagnosis. |
living in the labyrinth diana friel mcgowin: Between Two Worlds Ellen P. Young, 2010-08-25 This is the first book to explore, through personal accounts and vignettes, the rare moments of humor that unexpectedly pop up during the caregiving of people suffering from Alzheimer''s and related dementia. Young brings the courageous experiences of care providers and relatives to life as they encounter the challenges of dealing with these seriously afflicted patients. At the same time she reveals the touching and gently humorous moments that go a long way to ease the tension and pain. While respectful of the plight of affected families and patients, Young gathers a timeless collection of fear busters that access mirth with touching chapters such as Please Don''t Eat the Marigold, and I''ve Just Found Out I''m in Baltimore. By staring the Alzheimer''s monster down and even laughing a little in the face of it, Young says, we bolster our courage and release the chemicals (endorphins) in ourselves to gain a sense of well-being in the face of adversity. A must for all caregivers and families, this is truly a book that, once started, cannot be put down. |
living in the labyrinth diana friel mcgowin: Inside the Dementia Epidemic Martha Stettinius, 2012-07-23 One in 8 people over age 65 has Alzheimer's disease, and nearly fifty percent of those over age 85. With the passion of a committed daughter and the fervor of a tireless reporter, Martha Stettinius weaves a compelling story of her long journey caregiving for her demented mother with a broad exploration of the causes of dementia, means of treating it, and hopes for preventing it. Her greatest gift to readers is that of optimism that caregiving can deepen love, that dementia can be fought, and that families can be strengthened. Her book is appealing, enlightening, and inspiring. Includes appendices on dementia research; source notes; resources for caregivers; and an index. |
living in the labyrinth diana friel mcgowin: Contemporary Narratives of Dementia Sarah Falcus, Katsura Sako, 2019-01-15 This book examines narratives of dementia in contemporary literary texts, studying what is now a pressing issue with deep political, economic, and social implications for many ageing societies. As part of the increasing visibility of dementia in social and cultural life, these narratives pose ethical, aesthetic, and political questions about subjectivity, agency, and care that help us to interrogate the cultural discourse of dementia. Contemporary Narratives of Dementia is a seminal book that offers a sustained examination of a wide range of literary narratives, from auto/biographies and detective fiction, to children’s books and comic books. With its wide-reaching theoretical and critical scope, its comparative dimension, and its inclusion of multiple genres, this book is important for scholars engaging with studies of dementia and ageing in diverse disciplines. Sarah Falcus is a Reader in Contemporary Literature at the University of Huddersfield, UK. She has research interests in contemporary women’s writing, feminism and literary gerontology. She is the co-director of the Dementia and Cultural Narrative (DCN) network. Katsura Sako is an Associate Professor of English, at Keio University, Japan. Her main field of research is in post-war/contemporary British literature, and she has particular interests in gender, ageing and illness. She is a member of the steering committee of the DCN network. |
living in the labyrinth diana friel mcgowin: Recovering Bodies G. Thomas Couser, 1997-11-01 This is a provocative look at writing by and about people with illness or disability—in particular HIV/AIDS, breast cancer, deafness, and paralysis—who challenge the stigmas attached to their conditions by telling their lives in their own ways and on their own terms. Discussing memoirs, diaries, collaborative narratives, photo documentaries, essays, and other forms of life writing, G. Thomas Couser shows that these books are not primarily records of medical conditions; they are a means for individuals to recover their bodies (or those of loved ones) from marginalization and impersonal medical discourse. Responding to the recent growth of illness and disability narratives in the United States—such works as Juliet Wittman’s Breast Cancer Journal, John Hockenberry’s Moving Violations, Paul Monette’s Borrowed Time: An AIDS Memoir, and Lou Ann Walker’s A Loss for Words: The Story of Deafness in a Family—Couser addresses questions of both poetics and politics. He examines why and under what circumstances individuals choose to write about illness or disability; what role plot plays in such narratives; how and whether closure is achieved; who assumes the prerogative of narration; which conditions are most often represented; and which literary conventions lend themselves to representing particular conditions. By tracing the development of new subgenres of personal narrative in our time, this book explores how explicit consideration of illness and disability has enriched the repertoire of life writing. In addition, Couser’s discussion of medical discourse joins the current debate about whether the biomedical model is entirely conducive to humane care for ill and disabled people. With its sympathetic critique of the testimony of those most affected by these conditions, Recovering Bodies contributes to an understanding of the relations among bodily dysfunction, cultural conventions, and identity in contemporary America. |
living in the labyrinth diana friel mcgowin: Encyclopedia of Life Writing Margaretta Jolly, 2013-12-04 First published in 2001. Routledge is an imprint of Taylor & Francis, an informa company. |
living in the labyrinth diana friel mcgowin: The Work of Life Writing G. Thomas Couser, 2021-04-13 Life writing, in its various forms, does work that other forms of expression do not; it bears on the world in a way distinct from imaginative genres like fiction, drama, and poetry; it acts in and on history in significant ways. Memoirs of illness and disability often seek to depathologize the conditions that they recount. Memoirs of parents by their children extend or alter relations forged initially face to face in the home. At a time when memoir and other forms of life writing are being produced and consumed in unprecedented numbers, this book reminds readers that memoir is not mainly a literary genre or mere entertainment. Similarly, letters are not merely epiphenomena of our real lives. Correspondence does not just serve to communicate; it enacts and sustains human relationships. Memoir matters, and there’s life in letters. All life writing arises of our daily lives and has distinctive impacts on them and the culture in which we live. |
living in the labyrinth diana friel mcgowin: The Complete Guide to Alzheimer's-proofing Your Home Mark L. Warner, 2000 Shows how to create a home environment that helps cope with the difficulties associated with AD and related dementia. The author deals with both interior and exterior spaces, discussing problems and solutions associated with specific areas such as the kitchen, bathroom, corridors, patios and decks. Separate chapters focus on issues related to AD such as wandering, incontinence and access limitation. |
living in the labyrinth diana friel mcgowin: Ageing, Gender, and Illness in Anglophone Literature Heike Hartung, 2015-12-07 This study establishes age as a category of literary history, delineating age in its interaction with gender and narrative genre. Based on the historical premise that the view of ageing as a burden emerges as a specific narrative in the late eighteenth century, the study highlights how the changing experience of ageing is shaped by that of gender. By reading the Bildungsroman as a 'coming of age' novel, the book asks how the telling of a life in time affects individual age narratives. Bringing together the different perspectives of age and disability studies, the book argues that illness is already an important issue in the Bildungsroman's narratives of ageing. This theoretical stance provides new interpretations of canonical novels, visiting authors such as Johann Wolfgang Goethe, Frances Burney, Maria Edgeworth, Jane Austen, Charles Dickens, George Eliot, Samuel Beckett, and Jonathan Franzen. Drawing on the link between age and illness in the Bildungsroman's age narratives, the genre of 'dementia narrative' is presented as one of the directions which the Bildungsroman takes after its classical period. Applying these theoretical perspectives to canonical novels of the nineteenth century and to the new genre of 'dementia narrative', the volume also provides new insights into literary and genre history. This book introduces a new theoretical approach to cultural age studies and offers a comprehensive analysis of the connection between narratology, literary theory, gender and age studies. |
living in the labyrinth diana friel mcgowin: The Poetics and Politics of Alzheimer’s Disease Life-Writing Martina Zimmermann, 2017-06-07 This book is open access under a CC BY 4.0 license. This is the first book-length exploration of the thoughts and experiences expressed by dementia patients in published narratives over the last thirty years. It contrasts third-person caregiver and first-person patient accounts from different languages and a range of media, focusing on the poetical and political questions these narratives raise: what images do narrators appropriate; what narrative plot do they adapt; and how do they draw on established strategies of life-writing. It also analyses how these accounts engage with the culturally dominant Alzheimer’s narrative that centres on dependence and vulnerability, and addresses how they relate to discourses of gender and aging. Linking literary scholarship to the medico-scientific understanding of dementia as a neurodegenerative condition, this book argues that, first, patients’ articulations must be made central to dementia discourse; and second, committed alleviation of caregiver burden through social support systems and altered healthcare policies requires significantly altered views about aging, dementia, and Alzheimer’s patients. |
living in the labyrinth diana friel mcgowin: Life Out of Focus Daniel E. Harmon, 1999 Discusses the nature, possible causes, effects on the patient as well as family and friends, and treatment options of this deteriorative disease. |
living in the labyrinth diana friel mcgowin: A Critical History of Dementia Studies James Rupert Fletcher, Andrea Capstick, 2023-09-26 This book offers the first ever critical history of dementia studies. Focusing on the emergence of dementia studies as a discrete area of academic interest in the late 20th and early 21st centuries, it draws on critical theory to interrogate the very notion of dementia studies as an entity, shedding light on the affinities and contradictions that characterise the field. Drawing together a collection of internationally renowned experts in a variety of fields, including people with dementia, this volume includes perspectives from education, the arts, human rights and much more. This critical history sets out the shared intellectual space of ‘dementia studies’, from which non-medical dementia research can progress. The book is intended for researchers, academics and students of dementia studies, social gerontology, disability, chronic illness, health and social care. It will also appeal to activists and practitioners engaged in social work and caregiving involved in dementia research. |
living in the labyrinth diana friel mcgowin: A Return Journey Sue Petrovski, 2017-09-15 The Return Journey is the result of Susan Matthews Petrovski's personal journals during her mother's 8-year Alzheimer's journey and her correspondence with other Alzheimer's caregivers kind enough to share their innermost feelings and emotions. These caregivers' stories are an inside view into the lessons to be learned from looking through the personal peephole of family members at the heart of the Alzheimer's experience. Petrovski examines right and wrong choices, which will help those whose Alzheimer's journey or caregiving journey is just beginning, clearly and wisely explaining that with Alzheimer's there are no right ways, no best decisions, and no perfect answers. |
living in the labyrinth diana friel mcgowin: Mom's Ok, She Just Forgets Evelyn D. Mclay, 2010-03-05 - Dad only drives to the grocery store. - A support group? I don''t need one. - My husband is not ready for day care. - Nursing home placement? Never! These and similar expressions of denial are often heard in families struggling with the difficult challenges of Alzheimer''s or dementia in a loved one. Denial may seem to be an acceptable coping mechanism when faced with a disease that has no cure. But in fact the failure to accept reality can work against the welfare of the person suffering from a disease that causes dementia, making a bad situation worse for the whole family. In this reassuring and very helpful handbook for families, experienced caregivers Evelyn D. McLay and Ellen P. Young suggest various behaviors, tools, and techniques for moving beyond denial. Real people who have faced the many problems brought about by Alzheimer''s speak out, with hope, from these pages. They share their journeys from denial to loving action and an improved attitude that helps them deal with their personal plights. Separate chapters address the issues of caregiver burnout, developing communication skills, challenging behaviors that push your buttons, when to remove driving privileges, day care for the elderly, deciding on long-term care, and the need for acceptance. Without minimizing the daunting challenges of Alzheimer''s and dementia, the authors stress the importance of remaining positive and appreciating the moment while acting in the best interests of loved ones. |
living in the labyrinth diana friel mcgowin: Cognitive Disability and Its Challenge to Moral Philosophy Eva Feder Kittay, Licia Carlson, 2010-05-18 Through a series of essays contributed by clinicians, medicalhistorians, and prominent moral philosophers, CognitiveDisability and Its Challenge to Moral Philosophy addresses theethical, bio-ethical, epistemological, historical, andmeta-philosophical questions raised by cognitive disability Features essays by a prominent clinicians and medicalhistorians of cognitive disability, and prominent contemporaryphilosophers such as Ian Hacking, Martha Nussbaum, and PeterSinger Represents the first collection that brings togetherphilosophical discussions of Alzheimer's disease,intellectual/developmental disabilities, and autism under therubric of cognitive disability Offers insights into categories like Alzheimer's, mentalretardation, and autism, as well as issues such as care,personhood, justice, agency, and responsibility |
living in the labyrinth diana friel mcgowin: The Neurological Patient in History L. S. Jacyna, Stephen T. Casper, 2012 Parkinson's, Alzheimer's, Tourette's, multiple sclerosis, stroke: all are neurological illnesses that create dysfunction, distress, and disability. With their symptoms ranging from impaired movement and paralysis to hallucinations and dementia, neurological patients present myriad puzzling disorders and medical challenges. Throughout the nineteenth and twentieth centuries countless stories about neurological patients appeared in newspapers, books, medical papers, and films. Often the patients were romanticized; indeed, it was common for physicians to cast neurological patients in a grand performance, allegedly giving audiences access to deep philosophical insights about the meaning of life and being. Beyond these romanticized images, however, the neurological patient was difficult to diagnose. Experiments often approached unethical realms, and treatment created challenges for patients, courts, caregivers, and even for patient advocacy organizations. In this kaleidoscopic study, the contributors illustrate how the neurological patient was constructed in history and came to occupy its role in Western culture. Stephen T. Casper is Assistant Professor in Humanities and Social Sciences at Clarkson University. L. Stephen Jacyna is reader in the History of Medicine and Director of the Centre for the History of Medicine at University College London. |
living in the labyrinth diana friel mcgowin: Cast Me Not Off When I Am Old Carol Kasser, 2004-12-01 Cast Me Not Off helps the elderly and those who care for them make choices to maximize the quality of life in later years. Part I contains housing options and questions to consider when contemplating each choice. Part II contains vignettes from nursing homes to help family and staff learn how to reach out to residents. Part III contains readings and prayers that will be useful for the frail elderly and their caretakers. |
living in the labyrinth diana friel mcgowin: Aging with Grace David Snowdon, 2008-11-19 In 1986 Dr. David Snowdon, one of the world’s leading experts on Alzheimer’s disease, embarked on a revolutionary scientific study that would forever change the way we view aging—and ultimately living. Dubbed the “Nun Study” because it involves a unique population of 678 Catholic sisters, this remarkable long-term research project has made headlines worldwide with its provocative discoveries. Yet Aging with Grace is more than a groundbreaking health and science book. It is the inspiring human story of these remarkable women—ranging in age from 74 to 106—whose dedication to serving others may help all of us live longer and healthier lives. Totally accessible, with fascinating portraits of the nuns and the scientists who study them, Aging with Grace also offers a wealth of practical findings: • Why building linguistic ability in childhood may protect against Alzheimer’s • Which ordinary foods promote longevity and healthy brain function • Why preventing strokes and depression is key to avoiding Alzheimer’s • What role heredity plays, and why it’s never too late to start an exercise program • How attitude, faith, and community can add years to our lives A prescription for hope, Aging with Grace shows that old age doesn’t have to mean an inevitable slide into illness and disability; rather it can be a time of promise and productivity, intellectual and spiritual vigor—a time of true grace. |
living in the labyrinth diana friel mcgowin: Gentle Into the Darkness Patricia Ann Conrad, 2004 |
City-Data.com - Stats about all US cities - real estate, relocati…
What's on City-Data.com. We have over 74,000 city photos not found anywhere else, graphs of the latest real estate prices and sales trends, recent home sales, a home value estimator, …
RV living on your own land. (Greenville: real estate, mobil…
Jul 1, 2016 · My wife & I have talked about building a tiny home once we get back to the Greenville area. We've tossed many ideas back & forth of late. The one that we keep coming back to …
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San Bernardino, California (CA) Poverty Rate Data
19.2% of San Bernardino, CA residents had an income below the poverty level in 2023, which was 37.6% greater than the poverty level of 12.0% across the entire state of California. 14.5% of …
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Oct 16, 2011 · The 10% estimate is based on my 10 years living here, being a member of the community, going to town events, and meeting parents at school and sporting events and …
City-Data.com - Stats about all US cities - real estate, relocation ...
What's on City-Data.com. We have over 74,000 city photos not found anywhere else, graphs of the latest real estate prices and sales trends, recent home sales, a home value estimator, …
RV living on your own land. (Greenville: real estate, mobile home ...
Jul 1, 2016 · My wife & I have talked about building a tiny home once we get back to the Greenville area. We've tossed many ideas back & forth of late. The one that we keep coming …
Frugal Living Forum - Relocation, Moving, General and Local City ...
Jun 9, 2025 · Frugal Living Display Options: Showing threads 1 to 30 of 2271: Sorted By
San Bernardino, California (CA) Poverty Rate Data
19.2% of San Bernardino, CA residents had an income below the poverty level in 2023, which was 37.6% greater than the poverty level of 12.0% across the entire state of California. 14.5% of …
Living in Yorktown Heights (pros and cons) (Peekskill, Mahopac: …
Oct 16, 2011 · The 10% estimate is based on my 10 years living here, being a member of the community, going to town events, and meeting parents at school and sporting events and …
Cape May County, New Jersey (NJ) - City-Data.com
Jan 24, 2020 · December 2024 cost of living index in Cape May County: 101.9 (near average, U.S. average is 100) Industries providing employment: Educational, health and social services …
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Dec 11, 2024 · Huge development. 484 units at 30%, 50%, 70%, and 110% AMI, CB preference for Manhattan 12. Units look basic but functional, great opportunity
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3 days ago · Do most people really enjoy living in car dependent... Today 12:58 PM. by TamaraSavannah 2,571: 140,349: