Living With Ataxia An Information And Resource Guide

  living with ataxia an information and resource guide: Living with Ataxia Martha A. Nance, National Ataxia Foundation, 2003
  living with ataxia an information and resource guide: Living with Ataxia Martha A. Nance, 1997
  living with ataxia an information and resource guide: Forthcoming Books Rose Arny, 2000
  living with ataxia an information and resource guide: Ferguson Career Resource Guide for People with Disabilities, Third Edition, 2-Volume Set Facts On File, Incorporated, 2009 Each two-volume book contains four major sections: . - Introduction and Overview: Provides forewords by notables in the field and an outline of the book. - Essays: Features eight to 10 essays on topics such as workplace issues, financial aid, diversity, and more. - Directory: Contains descriptions and contact information for hundreds of organizations, schools, and associations, arranged by topic. - Further Resources/Indexes: Includes glossaries, appendixes, further reading, and indexes
  living with ataxia an information and resource guide: Inherited Ataxias A. E. Harding, 1993 In this volume, more than 50 leading international experts review the latest scientific and clinical observations on inherited ataxias. The book demonstrates how molecular genetic studies, as well as recent physiological, neurochemical, and clinical data, have generated new concepts on the nosology of these disorders. Close attention is given to the important practical applications of these new findings - in diagnosis, prognosis, and genetic counseling, in development of tests for prenatal diagnosis and carrier detection, and in the search for more effective therapies. The opening chapter identifies the clinical features that distinguish the various inherited ataxic syndromes and presents a classification based on etiology, mode of inheritance, age of onset, and associated clinical features. A major portion of the book focuses on current clinical and molecular genetic studies of different forms of inherited ataxia. Coverage includes a molecular analysis of the Friedreich's ataxia locus and extensive studies on autosomal recessive spastic ataxia of Charlevoix-Saguenay, ataxia telangiectasia, dominantly inherited spinocerebellar ataxias, Machado-Joseph disease, and inherited prion diseases. The contributors provide detailed information on the various clinical phenotypes of each form of inherited ataxia and thoroughly explain the use of linkage analysis and other molecular genetic techniques to localize and isolate the genes responsible for these diseases. The book also reviews the most significant research findings on neurotransmitters in the cerebellum, on the phosphoinositide second messenger system in cerebellar degenerative disorders, and on oligodendrocyte-associated andmyelin-associated inhibitors of neurite growth in the adult nervous system. The contributors assess recent progress in developing drugs for treatment of ataxias and other cerebellar movement disorders and identify new targets for pharmacological intervention. Experimental therapeutic observations on cerebellar grafting in heredodegenerative ataxia are also presented. This volume is an invaluable reference for clinicians treating patients with ataxias or counseling families at risk for inherited neurological diseases. It is also a rich source of ideas for molecular geneticists and for neuroscientists investigating disorders of the cerebellum.
  living with ataxia an information and resource guide: Health Fair Resource Guide , 1986
  living with ataxia an information and resource guide: Medication-Induced Movement Disorders Joseph H. Friedman, 2015-06-17 Medications that may produce movement disorders are widely used. The resulting disorders are often highly disconcerting for the patient and their relatives, especially when the connection between medication and disorder is not recognized. However, ascribing an adverse drug effect to medication exposure is often difficult, especially when the side effect is rare. Covering various drugs - including the major classes of medications working primarily on the brain, specifically antipsychotics and antidepressants – this all-encompassing review of medication-induced movement disorders aids early recognition and improved treatment. The problem of what to do when the offending medication cannot be reduced is also reviewed. It discusses the best options for evaluation and treatment, including medical imaging and deep brain stimulation, and guides the clinician in managing the disorder, making this a vital reference for medical specialists and consultants in neurology and neuropharmacology and any clinician seeing patients on medications crossing the blood-brain barrier.
  living with ataxia an information and resource guide: Cerebellar Disorders Mario Ubaldo Manto, Mario Manto, 2010-03-25 This practical guide summarizes and evaluates knowledge in the field of cerebellar disorders.
  living with ataxia an information and resource guide: Paralysis Resource Guide Sam Maddox, 2020
  living with ataxia an information and resource guide: Case Management Resource Guide , 1997
  living with ataxia an information and resource guide: The Complete Guide to Living Well Gluten-Free Beth Hillson, 2014-09-09 The everything-you-need-to-know guide to living gluten-free, whether you are celiac, gluten-sensitive or gluten-avoidant, from the president of the American Celiac Disease Alliance.
  living with ataxia an information and resource guide: NORD Resource Guide , 2000
  living with ataxia an information and resource guide: Cerebral Palsy Freeman Miller, Steven Bachrach, Nancy Lennon, Margaret E. O'Neil, 2020-11-05 Dr. Miller’s valuable resource helps members of the medical team navigate the complexity of cerebral palsy care by explaining unfamiliar treatments that fall outside of their own disciplines. Readers also benefit from a review of current practices in their own fields. Includes recommended treatment algorithms and is designed to help improve decision making. Written in a very conversational style and illustrated with lots of color the volume provides rehabilitational (part 1) and surgical aspects (part 2). Accomplished by a CD-ROM which provides lots of case studies - including walking analysis. The most comprehensive title on this topic written by a leading expert.
  living with ataxia an information and resource guide: The Cumulative Book Index , 1997 A world list of books in the English language.
  living with ataxia an information and resource guide: Field Manual of Wildlife Diseases , 1999
  living with ataxia an information and resource guide: The HELP Guide to Cerebral Palsy Nadire Berker, Selim Yalçin, 2005-01-01
  living with ataxia an information and resource guide: Bad Bug Book Mark Walderhaug, 2014-01-14 The Bad Bug Book 2nd Edition, released in 2012, provides current information about the major known agents that cause foodborne illness.Each chapter in this book is about a pathogen—a bacterium, virus, or parasite—or a natural toxin that can contaminate food and cause illness. The book contains scientific and technical information about the major pathogens that cause these kinds of illnesses.A separate “consumer box” in each chapter provides non-technical information, in everyday language. The boxes describe plainly what can make you sick and, more important, how to prevent it.The information provided in this handbook is abbreviated and general in nature, and is intended for practical use. It is not intended to be a comprehensive scientific or clinical reference.The Bad Bug Book is published by the Center for Food Safety and Applied Nutrition (CFSAN) of the Food and Drug Administration (FDA), U.S. Department of Health and Human Services.
  living with ataxia an information and resource guide: NIH Publications List National Institutes of Health (U.S.). Editorial Operations Branch, 1994
  living with ataxia an information and resource guide: Diagnosis and Management of Hypertrophic Cardiomyopathy Barry J. Maron, 2008-04-15 Diagnosis and Management of Hypertrophic Cardiomyopathy is aunique, multi-authored compendium of information regarding thecomplexities of clinical and genetic diagnosis, natural history,and management of hypertrophic cardiomyopathy (HCM)—the mostcommon and important of the genetic cardiovasculardiseases—as well as related issues impacting the health oftrained athletes. Edited by Dr. Barry J. Maron, a world authority on HCM, and withmajor contributions from all of the international experts in thisfield, this book provides a single comprehensive source ofinformation concerning HCM. Recent advances in the field arediscussed, including the importance of left ventricular outflowtract obstruction, the use of implantable defibrillators for theprevention of sudden death in young people, definition of thegenetic basis for HCM and its role in clinical diagnosis and riskstratification, the development of more precise strategies forassessing the level of risk for sudden death among all patientswith HCM, and the evolution of invasive interventions for heartfailure symptoms, such as surgical management and its alternatives(alcohol septal ablation and dual-chamber pacing). Key Features: Contributions from all experts in the field,representing diverse viewpoints regarding this heterogeneousdisease and related issues in athletes Information to dispel misunderstandings regarding issuesassociated with HCM and cardiovascular disease in athletes The only comprehensive source of information available on thetopic
  living with ataxia an information and resource guide: Handbook of Developmental Disabilities Samuel L. Odom, Robert H. Horner, Martha E. Snell, 2009-01-21 This authoritative handbook reviews the breadth of current knowledge about developmental disabilities: neuroscientific and genetic foundations; the impact on health, learning, and behavior; and effective educational and clinical practices. Leading authorities analyze what works in intervening with diverse children and families, from infancy through the school years and the transition to adulthood. Chapters present established and emerging approaches to promoting communication and language abilities, academic skills, positive social relationships, and vocational and independent living skills. Current practices in positive behavior support are discussed, as are strategies for supporting family adaptation and resilience.
  living with ataxia an information and resource guide: Accessible Yoga Jivana Heyman, 2019-11-05 “A treasure trove . . . what Yoga, capital Y, is all about.” —Donna Farhi “Nothing less than a gem.” —Judith Lasater “A vital tool.” —Book Riot This daring, visionary book revolutionizes yoga practice, making it truly accessible to everyone—in every body, at any age, and in any state of health Yoga practice has so much to offer us physically, emotionally, mentally, and spiritually. But many of us feel discouraged to practice because we see young, slim, flexible, well, and able-bodied people dominating yoga spaces. Yet, yoga is truly a practice for all—conferring enormous benefits to our overall well-being as our bodies change, age, and navigate various health challenges. Jivana Heyman, founder of Accessible Yoga, views yoga as a basic human right—saying we all deserve to practice it in whatever state we find our body or mind. Accessible Yoga offers a simple, clear, and wonderfully adaptable practice for all people regardless of ability, health, and body type. Heyman has spent over twenty years sharing yoga with people of all abilities and backgrounds, and in this book, he shares his knowledge by breaking down complex yoga poses, breathing practices, meditation techniques, and yoga teachings into clearly understandable and practical tools we can use every day, regardless of our limitations or challenges.
  living with ataxia an information and resource guide: Ehlers-Danlos Syndrome: A Multidisciplinary Approach J.W.G. Jacobs, L.J.M. Cornelissens, M.C. Veenhuizen, 2018-08-14 Generalized hypermobility has been known since ancient times, and a clinical description of Ehlers-Danlos syndrome (EDS) is said to have first been recorded by Hippocrates in 400 BC. Hypermobility syndromes occur frequently, but the wide spectrum of possible symptoms, coupled with a relative lack of awareness and recognition, are the reason that they are frequently not recognized, or remain undiagnosed. This book is an international, multidisciplinary guide to hypermobility syndromes, and EDS in particular. It aims to create better awareness of hypermobility syndromes among health professionals, including medical specialists, and to be a guide to the management of such syndromes for patients and practitioners. It is intended for use in daily clinical practice rather than as a reference book for research or the latest developments, and has been written to be understandable for any healthcare worker or educated patient without compromise to the scientific content. The book is organized as follows: chapters on classifications and genetics are followed by chapters on individual types, organ (system) manifestations and complications, and finally ethics and therapeutic strategies, with an appendix on surgery and the precautions which should attend it. A special effort has been made to take account of the perspective of the patient; two of the editors have EDS. The book will be of interest to patients with hypermobility syndromes and their families, as well as to all those healthcare practitioners who may encounter such syndromes in the course of their work.
  living with ataxia an information and resource guide: NORD Guide to Rare Disorders National Organization for Rare Disorders, 2003 NORD Guide to Rare Disorders is a comprehensive, practical, authoritative guide to the diagnosis and management of more than 800 rare diseases. The diseases are discussed in a uniform, easy-to-follow format--a brief description, signs and symptoms, etiology, related disorders, epidemiology, standard treatment, investigational treatment, resources, and references.The book includes a complete directory of orphan drugs, a full-color atlas of visual diagnostic signs, and a Master Resource List of support groups and helpful organizations. An index of symptoms and key words offers physicians valuable assistance in finding the information they need quickly.
  living with ataxia an information and resource guide: Healing Wounded Doctor-patient Relationships Linda Hanner, 1995
  living with ataxia an information and resource guide: Guidelines for Drinking-water Quality World Health Organization, 1993 This volume describes the methods used in the surveillance of drinking water quality in the light of the special problems of small-community supplies, particularly in developing countries, and outlines the strategies necessary to ensure that surveillance is effective.
  living with ataxia an information and resource guide: Guide to Disability and Rehabilitation Periodicals DIANE Publishing Company, 1996-06 Contains information about a wide range of journals, magazines, and newsletters that address issues relating to disabilities and rehabilitation. Designed to provide information about over 400 specific periodicals, as well as to introduce you to periodicals you may not have known about. Covers: administration, advocacy, counseling, health care, independent living, special education, specific disabilities, technology and vocational training and employment. Alpha and subject indices.
  living with ataxia an information and resource guide: Educators with Disabilities Joanne Gilmore, Diane Merchant, April Moore, 1981
  living with ataxia an information and resource guide: 1983 Guide to Health Information Resources in Print Christine S. Kradjian, 1983 Intended for health and patient education professionals. Over 3000 entries in 150 categories, e.g., cancer, diabetes, and stress, that include resources published by health care associations, corporations, federal and state government agencies, and nonprofit organizations. Arranged broadly under materials for professionals, materials for patients and clients, and supplier listings. Entries give bibliographical information, statement of contents, and format. No index.
  living with ataxia an information and resource guide: The Bad Bug Book FDA, U S Food & Drug Administrati, 2004 The Bad Bug was created from the materials assembled at the FDA website of the same name. This handbook provides basic facts regarding foodborne pathogenic microorganisms and natural toxins. It brings together in one place information from the Food & Drug Administration, the Centers for Disease Control & Prevention, the USDA Food Safety Inspection Service, and the National Institutes of Health.
  living with ataxia an information and resource guide: Children with Cerebral Palsy Elaine Geralis, Tom Ritter, 1991-01 CHILDREN WITH CEREBRAL PALSY is the first book that families of children with cerebral palsy should read. The second edition offers a complete spectrum of information and advice about cerebral palsy and its effect on development and education during a child's first six years. Parents' statements at the end of each chapter provide the reader with insight and perspective on how other families cope.
  living with ataxia an information and resource guide: What Psychotherapists Should Know About Disability Rhoda Olkin, 2012-04-06 This comprehensive volume provides the knowledge and skills that mental health professionals need for more effective, informed work with clients with disabilities. Combining her extensive knowledge as a clinician, researcher, and teacher with her personal experience as someone with a disability, Olkin provides an insider's perspective on critical issues that are often overlooked in training. A lucid conceptual framework is presented for understanding disability as a minority experience, one that is structured by social, legal, and attitudinal constraints as well as physical challenges. Illuminating frequently encountered psychosocial themes and concerns, chapters describe a range of approaches to dealing with disability issues in the treatment of adults, children, and families. Topics addressed include etiquette with clients with disabilities; special concerns in assessment, evaluation, and diagnosis; the impact of disability on sexuality and romance, as well as pregnancy, birthing, and parenting; the use of assistive technology and devices; disability and substance abuse; and more. Filled with clinical examples and observations, the volume also discusses strategies for enhancing teaching, training, and research.
  living with ataxia an information and resource guide: Imaging Acute Neurologic Disease Massimo Filippi, Jack H. Simon, 2014-09-11 A comprehensive survey of best practice in using diagnostic imaging in acute neurologic conditions. The symptom-based approach guides the choice of the available imaging tools for efficient, accurate, and cost-effective diagnosis. Effective examination algorithms integrate neurological and imaging concepts with the practical demands and constraints of emergency care.
  living with ataxia an information and resource guide: Physicians' Guide to Rare Diseases , 1995
  living with ataxia an information and resource guide: Augmentative Communication Strategies for Adults with Acute Or Chronic Medical Conditions David R. Beukelman, Kathryn L. Garrett, Kathryn M. Yorkston, 2007 This practical guidebook and CD?ROM set gathers in one place everything professionals need to support and improve communication for adults with specific medical conditions. Includes expert guidance on providing effective AAC services for people with a ran
  living with ataxia an information and resource guide: Nutrient Requirements of Dogs and Cats National Research Council, Division on Earth and Life Studies, Board on Agriculture and Natural Resources, Committee on Animal Nutrition, Subcommittee on Dog and Cat Nutrition, 2006-07-01 Updating recommendations last made by the National Research Council in the mid-1980s, this report provides nutrient recommendations based on physical activity and stage in life, major factors that influence nutrient needs. It looks at how nutrients are metabolized in the bodies of dogs and cats, indications of nutrient deficiency, and diseases related to poor nutrition. The report provides a valuable resource for industry professionals formulating diets, scientists setting research agendas, government officials developing regulations for pet food labeling, and as a university textbook for dog and cat nutrition. It can also guide pet owners feeding decisions for their pets with information on specific nutrient needs, characteristics of different types of pet foods, and factors to consider when feeding cats and dogs.
  living with ataxia an information and resource guide: Guidelines for the Treatment of Alcohol Problems Paul S. Haber, Benjamin C. Riordan, 2021-04-01 The Australian Guidelines for the Treatment of Alcohol Problems have been periodically developed over the past 25 years. In 1993, the first version of these guidelines, titled: ‘An outline for the management of alcohol problems: Quality assurance in the treatment of drug dependence project’ was published (Mattick & Jarvis 1993). The Australian Government commissioned an update a decade later (Shand et al. 2003) and a further edition in 2009 to integrate the Guidelines with the Australian Guidelines to Reduce Health Risks from Drinking Alcohol (National Health and Medical Research Council, NHMRC 2009; Haber et al., 2009). The present version of the Guidelines was also commissioned by the Commonwealth of Australia to remain current and integrated with the updated NHMRC consumption guidelines (2020). In order to ensure that guidelines remain relevant, the next set of guidelines should be updated in 2025, consistent with NHMRC recommendation that guidelines be updated every five years. These guidelines aim to provide up-to-date, evidence-based information to clinicians on available treatments for people with alcohol problems and are largely directed towards individual clinicians in practice, such as primary care physicians (general practitioners, nursing staff), specialist medical practitioners, psychologists and other counsellors, and other health professionals. Some chapters highlight service or system level issues that impact on clinicians and their patients. These include recommendations concerning Aboriginal and Torres Strait Islander peoples, culturally and linguistically diverse groups, stigma, and discrimination. Elsewhere, organisation capacity is implied, such as medical resources for withdrawal management where recommendations indicate use of medications. As all forms of treatment will not be readily available or suitable for all populations or settings, these guidelines may require interpretation and adaptation.
  living with ataxia an information and resource guide: Neurological, Psychiatric, and Developmental Disorders Institute of Medicine, Board on Global Health, Committee on Nervous System Disorders in Developing Countries, 2001-01-01 Brain disordersâ€neurological, psychiatric, and developmentalâ€now affect at least 250 million people in the developing world, and this number is expected to rise as life expectancy increases. Yet public and private health systems in developing countries have paid relatively little attention to brain disorders. The negative attitudes, prejudice, and stigma that often surround many of these disorders have contributed to this neglect. Lacking proper diagnosis and treatment, millions of individual lives are lost to disability and death. Such conditions exact both personal and economic costs on families, communities, and nations. The report describes the causes and risk factors associated with brain disorders. It focuses on six representative brain disorders that are prevalent in developing countries: developmental disabilities, epilepsy, schizophrenia, bipolar disorder, depression, and stroke. The report makes detailed recommendations of ways to reduce the toll exacted by these six disorders. In broader strokes, the report also proposes six major strategies toward reducing the overall burden of brain disorders in the developing world.
  living with ataxia an information and resource guide: Mental Health for Emergency Departments , 2009
  living with ataxia an information and resource guide: Physicians' Guide to Rare Diseases Jess G. Thoene, 1995 This classic reference, now with almost 900 disease descriptions, is edited by nationally known pediatrician Jess G. Thoene, M.D. & provides a quick, organized approach to identifying puzzling & unusual symptoms, giving patients the opportunity for early diagnosis & treatment. Special features include: * A full color atlas of visual clues, cross referenced to disease listings. * Thirteen separate specialty sections with an expert overview to introduce each section. Eminent clinicians from the outstanding research centers in rare diseases give you the current status of research & practical approaches to diagnosis & therapy of the rare diseases in that specialty. * Full reference to more than 250 orphan drugs. Each drug is cross referenced to the appropriate disease description. * Clear language for the Layperson. Though written for physicians, the descriptions of diseases, symptoms & treatments are clear & understandable for patients, educators & others outside the medical profession. Each disease description provides symptomatology, etiology, affected population & a comparison of related disorders. Each disease description contains a list of other resources to consult: voluntary agencies, units of the National Institutes of Health, research centers around the country, etc. Addresses & phone numbers are provided in a central reference. Library Journal: ...PHYSICIAN'S GUIDE...is recommended for medical collections & public libraries with consumer health collections.
  living with ataxia an information and resource guide: The Stroke Recovery Book Kip Burkman, 2010-10 ...you are probably frightened, worried, and consumed with questions. What can you expect from recovery? How much rehabilitation will be needed?
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