Living With Parkinson S Disease Book

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  living with parkinson's disease book: Navigating Life with Parkinson Disease Sotirios Parashos, Rose Wichmann, 2012-11-20 Here is a marvelous guide for anyone affected by Parkinson's disease--patients, caregivers, family members, and friends. Containing the most up-to-date information on the disease, one of the most common neurological disorders, it discusses the available treatments and provides practical advice on how to manage the disease in the long term. Emphasizing life-style adjustments that will provide a better quality of life and moderate the burden for patients and their loved ones, the book answers many questions and clarifies misunderstandings regarding the disease. Written by two experts on Parkinson's disease and a freelance journalist, the book is approachable and easily understandable. Question and answer sections are provided, while hot topics are highlighted for easy visibility. The authors have also included true patient stories that will both inspire and instruct, and they have addressed several topics often not mentioned in physician-directed disease management, such as how to talk to family and friends about one's life with Parkinson's.
  living with parkinson's disease book: Parkinson's Disease Shelley Peterman Schwarz, 2006-06-06 An indispensable resource for patients, families, and caregivers Filled with creative tips and techniques, this updated second edition of Parkinson's Disease: 300 Tips for Making Life Easier contains a wealth of ideas and shortcuts for working, organizing, simplifying, and conserving time and energy while living with Parkinson's disease. It includes: Ways to make your home safe and accessible, your mealtimes more pleasurable, and your communications easier Unique product suggestions that make daily living tasks less stressful Extensive resources to help you easily locate items and services
  living with parkinson's disease book: Parkinson's Disease William J. Weiner, Lisa M. Shulman, Anthony E. Lang, 2006-11-13 Recent innovations, including deep brain stimulation and new medications, have significantly improved the lives of people with Parkinson’s disease. Nevertheless, medical, emotional, and physical challenges remain. The second edition of this accessible and comprehensive guide provides crucial information for managing this complex condition, including details on the use of medications, diet, exercise, complementary therapies, and surgery. The second edition includes new information about: • The genetic and hereditary pattern of the disease • Medications and uses of established medications • Other approaches to treating the symptoms of Parkinson’s • Juvenile-onset Parkinson’s disease • Normal pressure hydrocephalus • The effects of fluctuating hormones on disease symptoms • Fetal cell transplants and porcine cell transplants • The nutritional supplement Co-Enzyme Q10
  living with parkinson's disease book: Life in the Balance Thomas B. Graboys, Peter Zheutlin, 2008 Chronicles the author's descent from a top cardiologist to a patient slowly succumbing to Parkinson's disease and dementia, including how he struggles with the feelings he experiences daily and the impact of the diseases in his life.
  living with parkinson's disease book: The New Parkinson's Disease Treatment Book J. Eric Ahlskog, PhD, MD, 2015-08-03 The fundamental guide to the most effective treatments for Parkinson's Disease, from a Mayo Clinic doctor with thirty years of clinical and research experience. In this second edition follow-up to the extremely successful first edition, Dr. Ahlskog draws on thirty years of clinical experience to present the definitive guide to dealing with all aspects of Parkinson's Disease, from treatment options and side effects to the impact of the disease on caregivers and family. Dr. Ahlskog's goal is to educate patients so that they can better team up with their doctors to do battle with the disease, streamlining the decision-making process and enhancing their treatment. To do this, Dr. Ahlskog offers a gold mine of information, distilled from his years of experience treating people with Parkinson's at the Mayo Clinic. In addition to providing a comprehensive account of Parkinson's medications, this book also examines additional aspects of treatment, such as the role of nutrition, exercise, and physical therapy. Although many commendable texts have been written on the subject of Parkinson's Disease, their discussions of treatment have not been in depth. Dr. Ahlskog sifts through aspects of the disease in order to give the reader a comprehensive sense of Parkinson's and the best available treatment options. With a broader understanding of the disease and the available options, patients are able to make more informed choices, and doctors are able to provide more tailored care. This book delivers hopeful, helpful, and extensive information to all parties concerned: patients, caregivers, and doctors. The ultimate guide to symptoms and treatment, this thoroughly updated second edition is the first place patients should turn for reliable, easy-to-grasp information on Parkinson's Disease.
  living with parkinson's disease book: Parkinson's Disease and Quality of Life Lucien Cote, Lola L. Sprinzeles, Robin Elliott, Austin H. Kutscher, 2014-01-21 Learn to handle the problems that Parkinson's patients face Through Parkinson's Disease and Quality of Life, you will discover common problem areas seen in patients with Parkinson's disease. This book explores problems that interfere with functional independence of patients and gives examples of occupational therapy intervention and treatment techniques. Parkinson's Disease and Quality of Life boldly deals with many seldom talked about real-life issues facing people with Parkinson's disease, including continued sexual intimacy and urinary incontinence. Although these issues may not be curable, this book provides you with effective treatments through data and case studies. Parkinson's Disease and Quality of Life offers caregivers a step-by-step plan to get organized. It includes a plan to put together a workbook of all relevant information, as well as tips on how to safeguard every room for a Parkinson's disease patient. This book helps remind you that the families of the patient must not be forgotten and that they can get the help they need through support groups, community resources, and from professional staffing such as nurses and aides. Parkinson's Disease and Quality of Life will assist you in helping your patients by: using music therapy to help calm patients realizing the legal impact of Parkinson's disease by discussing living wills, health care proxies, durable power of attorney, and revocable and irrevocable trusts with your clients discovering that cognitive changes, dementia, and depression can complicate the treatment of the disease and be more disabling than the loss of motor function exploring the nursing home as a viable options for clients as well as their families Parkinson's Disease and Quality of Life also brings to light the important subject of knowing the patients insurance policies and working out contingency plans, like living wills, before they are needed. This book gives you much-needed information on accessing benefits for Parkinson's patients, including medicare, social security, Veteran's benefits, and much more. Parkinson's Disease and Quality of Life is full of methods and ideas to improve the lives of the Parkinson's patient as well as their families.
  living with parkinson's disease book: Surviving Adversity Gord Carley, 2007-03 Surviving Adversity--living with Parkinson's disease contains the profiles of a professional golfer, neurologist, acclaimed lawyer, children's author, nurse, legendary cyclist, former Attorney General, highly respected news anchor and 20 other men and women. They all share their inspiring stories of how they have adjusted to Parkinson's disease. This book will provide the reader with perspective and hope.
  living with parkinson's disease book: Parkinson's Disease For Dummies Jo Horne, Michele Tagliati, 2022-08-16 Maintain a take-charge attitude and live your life to the fullest with Parkinson's Whether the diagnosis is yours or that of a loved one, Parkinson's Disease for Dummies contains everything you need to know about living with this disease. This book is an easy-to-understand, straightforward, and sometimes humorous guide that offers proven techniques for coping with daily issues, finding the right doctors, and providing care as the disease progresses. This user-friendly guide helps you navigate you through the important steps toward taking charge of your condition. You aren't alone—inside, you'll discover proven coping skills and first-hand advice, along with practical tools that will help you navigate the treatment journey. In classic, compassionate Dummies style, Parkinson's Disease For Dummies will answer all your questions, and guide you through the process of finding your own answers as well. Keep your mind sharp, stay in shape, and keep your stress under control Life a full and satisfying life after a Parkinson's diagnosis Get the most current information on Parkinson's medications and treatments Learn the best ways to support loved ones living with Parkinson's With updates on the latest in alternative treatments, dementia, and young onset PD, Parkinson's Disease for Dummies is here to show you how you can keep a positive attitude and lead an active, productive life.
  living with parkinson's disease book: The Complete Guide for People with Parkinson's Disease and Their Loved Ones Lianna Marie, 2020 A diagnosis of Parkinson's disease is as disorienting as it is devastating. The Complete Guide for People With Parkinson's Disease and Their Loved Ones helps make sense of what comes next and what can be done, not just for those suffering from the disease but for their family and friends as well. A trained nurse and primary caregiver for her mother, who was diagnosed with Parkinson's disease in 1991, Lianna Marie draws upon over twenty years of education, research, and direct experience. Written in straightforward and easily accessible language, this essential guide aims to help patients better understand their role in their treatment so that they may continue to lead happy and hopeful lives. Topics covered include nutrition and exercise, alternative and complementary therapies, medication and treatment, and what caregivers can do to help. Written by an international expert on Parkinson's who has confronted the disease firsthand, The Complete Guide serves as the go-to book for comprehensive, easy-to-understand information for all Parkinson's patients and their loved ones.
  living with parkinson's disease book: Living Well, Running Hard John Ball, 2011-07-20 In 1983, John Ball was almost at a midpoint in his lifea time to assess the first half before he carried on with the second. It was then that he had to deal with the diagnosis of Parkinsons disease, just before he turned forty years old. In this memoir, Ball narrates his story of how he has lived with Parkinsons disease and how he has worked to create a better life for others struggling with difficult diagnoses and debilitating diseases. Living Well, Running Hard offers insight into Balls growth from isolation into a leadership role in the Parkinsons community. His long struggle to understand the disease provides an in-depth look at the complexities of Parkinsons. Ball tells how his transition was triggered by a childhood desire to run a marathon and how his love of running, his desire to take action, and his willingness to take on challenges come together in the formation of Team Parkinson. In spite of his diagnosis, Ball has continued to run the Los Angeles Marathon each of the last fifteen years. Intimate and inspiring, Living Well, Running Hard communicates one mans story of perseverance and triumph.
  living with parkinson's disease book: Ending Parkinson's Disease Ray Dorsey, Michael S. Okun, Todd Sherer, Bastiaan R. Bloem, 2021-03-16 In this must-read guide (Lonnie Ali), four leading doctors and advocates offer a bold action plan to prevent, care for, and treat Parkinson's disease-one of the great health challenges of our time. Brain diseases are now the world's leading source of disability. The fastest growing of these is Parkinson's: the number of impacted patients has doubled to more than six million over the last twenty-five years and is projected to double again by 2040. Harmful pesticides that increase the risk of Parkinson's continue to proliferate, many people remain undiagnosed and untreated, research funding stagnates, and the most effective treatment is now a half century old. In Ending Parkinson's Disease, four top experts provide a plan to help prevent Parkinson's, improve care and treatment, and end the silence associated with this devastating disease.
  living with parkinson's disease book: Parkinson's Disease & the Art of Moving John Argue, 2000 Over 100 photos illustrate exercises derived from yoga and t'ai chi techniques to help alleviate the symptoms that accompany Parkinson's disease. Illustrations.
  living with parkinson's disease book: Parkinson’s Disease for Dummies® (Volume 2 of 2) (EasyRead Super Large 20pt Edition) ,
  living with parkinson's disease book: A Soft Voice in a Noisy World Karl Robb, 2012-11 A compilation of insights, practical tools and inspirational suggestions for improving mind-body connection and empowering healing.
  living with parkinson's disease book: Living Well with Parkinson's Glenna Wotton Atwood, 2007-08-03 The long-awaited update to the definitive guide to successfully living with Parkinson's disease Known for its upbeat, informative, and inspirational guidance, Living Well with Parkinson's includes a wealth of up-to-date medical information for Parkinson's sufferers, who number over 1 million in the U.S. alone. Combined with the author's poignant personal account of her own struggles with the disease, this new edition features coverage of pallidotomy (a new surgical technique), the dramatic implications of recent genetic research, and new drugs and therapies. The book also includes tips on dealing with social services and elder law, maintaining a positive attitude, handling issues with spouses and children, and finding support groups. Glenna Wotton Atwood, a former home economics teacher from Maine, lived with Parkinson's for over two decades until her death in 1998. Lila Green Hunnewell (Rockaway, NJ) is a freelance writer and editor. Roxanne Moore Saucier (Bangor, ME) is a journalist with the Bangor Daily News.
  living with parkinson's disease book: So, I've Got Parkinson's Disease Terry Rummins, 2013-02 Terry Rummins was diagnosed with Parkinson’s 10 years ago. So, I’ve Got Parkinson’s Disease is her story and covers her diagnosis and the progression of the condition – from the first warning tremors in her right hand to her day-to-day life now.When Terry was first diagnosed she didn’t know what to expect, veering wildly between visualising herself in a wheelchair within a few months and not really believing that there was anything wrong with her. Parkinson’s is a paradoxical disorder. ‘On’ and ‘Off’ are terms used to describe the regular and debilitating changes the Parkinson’s person can experience as a result of the interaction between symptoms and medication: from feeling well to the feeling of having aged twenty years in as many minutes. Terry stresses the importance of learning which symptoms are a result of the Parkinson’s itself, which are the results of taking particular drugs and which are as a result of environmental factors such as stress and diet. Terry has written this book in the hope that describing her experience will benefit others who have been diagnosed with Parkinson’s and to help them understand their expectations of how the condition may affect them. This is a candid story, told with humour and contains a positive message for those recently diagnosed and those close to them. It is also for anyone interested in what happens when life presents an unpleasant surprise.
  living with parkinson's disease book: Exercises for Parkinson's Disease William Smith, 2019-10-29 Exercises for Parkinson’s Disease is the complete guide to achieving better health, providing everything from tips on how to structure your day to take full advantage of higher energy periods, to tailor-made workout programs designed to boost mobility and balance. Studies have shown that exercise improves fitness and energy levels in Parkinson’s patients, while also relieving pain and helping them retain control in their daily life. Exercises for Parkinson’s Disease works as an integrated part of any Parkinson’s treatment plan, optimizing mobility, increasing strength and minimizing pain, while providing lifestyle tips to keep you motivated and moving forward. Exercises for Parkinson’s Disease also includes: - A detailed overview of how exercise can improve Parkinson’s disease symptoms - Clear, informative pictures of safe, effective exercises - Information on Parkinson’s life-hacks for relaxation and motivation - Detailed instructions on how to perform each movement - A complete fitness approach to restoring functionality Featuring expert-approved fitness techniques, with options ranging from resistance training to mobility movements to light strength exercises, Exercises for Parkinson’s Disease is the all-in-one resource for anyone looking to take back control and live their best life!
  living with parkinson's disease book: Not Afraid to Fall Brian Hall, 2019-12-23 The true story of the author's battle with Parkinson's disease, and how he refused to back away from his goals! Brian Hall's tenacity, self-examination, and acceptance will drive home the message: Parkinson's disease is not the end - it's a new beginning.When he began showing symptoms at the age of 14, he worried that Parkinson's disease would define his life, but instead it's reaffirmed the person he's become and what he's most proud of. Whether on skis or a mountain bike, he keeps his physical spirit engaged and alive. His inspirational memoir will help you or a loved one bring balance back into your life.
  living with parkinson's disease book: My Degeneration Peter Dunlap-Shohl, 2015-11-15 How does one deal with a diagnosis of Parkinson’s disease at the age of forty-three? My Degeneration, by former Anchorage Daily News staff cartoonist Peter Dunlap-Shohl, answers the question with humor and passion, recounting the author’s attempt to come to grips with the “malicious whimsy” of this chronic, progressive, and disabling disease. This graphic novel tracks Dunlap-Shohl’s journey through depression, the worsening symptoms of the disease, the juggling of medications and their side effects, the impact on relations with family and community, and the raft of mental and physical changes wrought by the malady. My Degeneration examines the current state of Parkinson’s care, including doctor/patient relations and the repercussions of a disease that, among other things, impairs movement, can rob patients of their ability to speak or write, degrades sufferers’ ability to deal with complexity, and interferes with the sense of balance. Readers learn what it’s like to undergo a dramatic, demanding, and audacious bit of high-tech brain surgery that can mysteriously restore much of a patient’s control over symptoms. But My Degeneration is more than a Parkinson’s memoir. Dunlap-Shohl gives the person newly diagnosed with Parkinson’s disease the information necessary to cope with it on a day-to-day basis. He chronicles the changes that life with the disease can bring to the way one sees the world and the way one is seen by the wider community. Dunlap-Shohl imparts a realistic basis for hope—hope not only to carry on, but to enjoy a decent quality of life.
  living with parkinson's disease book: Brain Storms Jon Palfreman, 2015-09-15 “The best and clearest book I’ve encountered on the current state of knowledge about Parkinson’s Disease . . . a master storyteller.” —The Tampa Tribune Seven million people worldwide suffer from Parkinson’s, and doctors, researchers, and patients continue to hunt for a cure. In Brain Storms, Peabody Award–winning journalist Jon Palfreman tells their story—a story that became his own when he was diagnosed with the debilitating illness. Palfreman chronicles how scientists have worked to crack the mystery of what was once called the shaking palsy, from the earliest clinical descriptions of tremors, gait freezing, and micrographia to the cutting edge of neuroscience, and charts the victories and setbacks of a massive international effort to best the disease. He takes us back to the 1950s and the discovery of L-dopa. He delves into other therapeutic approaches to this perplexing condition, from partial lobotomies and deep brain stimulation to neural grafting. And he shares inspiring stories of brave individuals living with Parkinson’s, from a former professional ballet dancer who tricks her body to move freely again to a patient who cannot walk but astounds doctors when he rides a bicycle with no trouble at all. The race is on to stop or reverse neurodegenerative conditions like Parkinson’s and Alzheimer’s. Brain Storms is the long-overdue, riveting, and deeply personal story of that race, and a passionate, insightful look into the lives of those affected. “Well written and poignant.” —The Wall Street Journal “[Palfreman] has an excellent grasp on the science behind the disease . . . but it is as a human story that the book is most compelling.” —The Times Literary Supplement “Clean prose, clear thought and fascinating stories.” —The Miami Herald “Extraordinary case studies abound.” —Nature “Fast-paced, captivating . . . part scientific investigation, part medical detective story, and part memoir . . . it opens wide a window into the world of Parkinson’s.” —Publishers Weekly (starred review)
  living with parkinson's disease book: Rising Above Parkinson's Greg Ritscher, 2020-04 Easy to read and energetic - this powerful guidebook on Parkinson's Disease will get you up off your couch and living your best life despite your difficult circumstances! This compact narrative is full of practical strategies and thought models designed to help you work through your physical struggles and mental battles. Covering all the foundational knowledge and tactics you will need on your journey, Greg artfully layers in lots of humor, faith, and wisdom as he unfolds his own path alongside yours. This handy book is sure to leave you motivated to take on some of your biggest challenges as you learn to thrive beyond your previous expectations! About the Author: Greg Ritscher is a dynamic speaker with decades of experience in motivating individuals and corporations to take on measurable goals to claim the success they desire. He himself was diagnosed with Parkinson's Disease in 2011 amid the hustle of career and family life. Shortly after coming to terms with his regressive condition, Greg made the decision to take Parkinson's head-on with a new sense of urgent passion and purpose. Sadly, just a few years later, as he was finally settling into his new pace of life, he was hit with a second disaster, prostate cancer. Battling life-threatening medical conditions has almost become second nature to Greg. He refuses to become complacent, or merely be a victim of circumstance. Greg makes every single day count for something better. Maintaining a sharp mind and a passion for fitness is no longer just a personal preference, for Greg it has become a matter of survival. This former Warlord of Commerce is quickly becoming a true champion for the greater Parkinson's community, as well as anyone facing major setbacks in their lives. If you are not reading this guy's book you are definitely missing out on the wisdom and fortitude of this humble yet fiery man of action. What Readers are Saying: Much more than a how-to book .... It is a snapshot of a man who is truly loved and appreciated by the people around him both in sickness and in health. - Joe Miller, Parkinson's Pointe Rising Above Parkinson's is an upbeat read covering everything you need to know about Parkinson's Disease, with humor, faith, and a big dose of good-old-fashioned motivation! - COMKAID, Book Reviews Packed with ... helpful information and tips, all based on the author's personal experience living with Parkinson's. I highly recommend this book! - John M. Dean, JohnMDean.com
  living with parkinson's disease book: Parkinson's Disease Guide for the Newly Diagnosed Peter LeWitt, 2020-06-09 Effective and modern treatment strategies for those newly diagnosed with Parkinson’s Whether it’s you or a family member, receiving a diagnosis of Parkinson’s disease can generate emotions of anger, frustration, sadness, and confusion—but you’re not in this fight alone. Parkinson’s Disease for the Newly Diagnosed is one of the most helpful Parkinson’s disease books, giving you the tools to conquer those feelings of being overwhelmed and helping you to be better prepared for life post-diagnosis. In one of the most extensive, up-to-date Parkinson’s disease books, you’ll find resources for maintaining realistic optimism while living with Parkinson’s disease. With helpful information and advice from how to build a community and patient-caregiver relationships, to assembling your primary care team and more, there’s practical advice for addressing what life will be like moving forward. This standout among Parkinson’s disease books includes: Set expectations—Go beyond other Parkinson’s disease books with an in-depth overview of all the stages from early to advanced. Tailored for you—Use strategies for managing your symptoms that are straightforward and specifically designed for the newly diagnosed. Positive, practical advice—Find out about support groups, how best to adapt your home, preserve your independence, and more in one of the most comprehensive Parkinson’s disease books available. If you’re looking for Parkinson’s disease books that help you understand and manage your symptoms, Parkinson’s Disease for the Newly Diagnosed delivers results.
  living with parkinson's disease book: Parkinson's Disease Abraham N. Lieberman, 1995 A practical and holistic approach to understanding this degenerative brain disease, and the treatments and implications for the future. Includes an A-Z of symptoms and side effects and a resource guide
  living with parkinson's disease book: Goodbye Parkinson's, Hello Life Alex Kerten, David Brinn, 2016 Alex Kerten reveals his breakthrough technique that combines dance therapy, behavior modification, and martial arts to prove that there is life beyond your doctor's diagnosis of Parkinson's disease. Alex shares his insights in an informal style that includes 20 easy-to-follow exercises. Those who follow his techniques can eliminate many of their symptoms and return to a productive and fulfilling life.
  living with parkinson's disease book: Ivan Ivan Vaughan, 1986
  living with parkinson's disease book: Living with Parkinson's Disease Michael S. Okun,
  living with parkinson's disease book: Optimal Health with Parkinson's Disease Monique L. Giroux, MD, 2015-11-11 Safely integrate complementary, alternative, and lifestyle medicine with conventional medicine in the treatment of Parkinsonís disease. For many with Parkinsonís disease, adding complementary, alternative, and lifestyle therapies to a care plan can result in symptom relief and a higher quality of life without compromising conventional treatment. Written by a board-certified neurologist and expert in mind-body medicine, Optimal Health with Parkinsonís Diseaseprovides a thorough and up-to-date guide to a variety of therapies so that you and your health care team can make informed decisions to help you achieve optimal health. Key Features: Learn the benefits of a holistic approach Find effective, low risk therapies for symptom relief such as tremor, muscle rigidity, depression, constipation, and insomnia Understand the pros and cons of popular diet and exercise approaches Determine which integrative therapies are best for you Personalize your treatment plan to help meet your goals
  living with parkinson's disease book: A Funny Thing Happened on the Way to the Future Michael J. Fox, 2010-04-13 Michael J. Fox abandoned high school to pursue an acting career, but went on to receive honorary degrees from several universities and garner the highest accolades for his acting, as well as for his writing. In his new book, he inspires and motivates graduates to recognize opportunities, maximize their abilities, and roll with the punches--all with his trademark optimism, warmth, and humor. In A Funny Thing Happened on the Way to the Future, Michael draws on his own life experiences to make a case that real learning happens when life goes skidding sideways. He writes of coming to Los Angeles from Canada at age eighteen and attempting to make his way as an actor. Fox offers up a comically skewed take on how, in his own way, he fulfilled the requirements of a college syllabus. He learned Economics as a starving artist; an unexpected turn as a neophyte activist schooled him in Political Science; and his approach to Comparative Literature involved stacking books up against their movie versions. Replete with personal stories and hilarious anecdotes, Michael J. Fox's new book is the perfect gift for graduates.
  living with parkinson's disease book: Parkinson's Disease: A Multidisciplinary Guide to Management Fiona Lindop, Rob Skelly, 2021-10 This new book is a practical guide to integrated, multidisciplinary care for people with Parkinson's. Written by experts in Parkinson's care, the book explains the common symptoms at each stage of Parkinson's and describes pharmacological and non-pharmacological interventions. The role of each discipline within the multidisciplinary team (MDT) is outlined and the perspectives of individuals with Parkinson's and their caregivers are explored. Parkinson's Disease: A Multidisciplinary Guide to Management is ideal for all health care professionals who want to deliver the best care for people with Parkinson's. It explains the concepts of multidisciplinary working in Parkinson's and offers evidence-based, practical guidance to support health care professionals in delivering the best patient outcomes. Evidence-based advice to ensure best practice Top tips in every chapter for practical guidance Person-centred approach that orders information according to Parkinson's stage rather than by discipline Contributions from many members of the MDT including neurologists, geriatricians, nurses, physiotherapists, occupational therapists, speech and language therapists and psychologists Insights from people with Parkinson's Latest challenges affecting Parkinson's care, including remote management, bone health and exercise Developing a multidisciplinary Parkinson's service Atypical Parkinsonian syndromes including progressive supranuclear palsy, corticobasal degeneration and multiple system atrophy
  living with parkinson's disease book: Deep Within the Brain Helmut Dubiel, 2009-10-27 At the age of forty-six, philosopher and university professor Helmut Dubiel was diagnosed with Parkinson's disease. In the early stages of his sickness, fearing censure and ostracism, Dubiel did his utmost to conceal his condition. But when his symptoms became too obvious to camouflage, he was obliged to admit defeat and decided to undergo deep brain stimulation surgery. Following this operation, Dubiel found himself in possession of a peculiar power: with little more than the flick of a switch he was able to choose between a personality defined as irascible and maudlin and the lucid, quick-thinking academic he had always been. In this fascinating book, Dubiel describes the course of his illness with a philosopher's aplomb, ennobling his personal experience with intellectual flair and scientific insight as he makes connections between his own medical drama and some of today's most significant global tendencies. Above all,Deep Within the Brain describes a battle: the battle between the inclination to give up, to view oneself as dead to the world, and the force necessary to reinvent oneself and rise above one's illness. Devoid of self-pity, Dubiel vanquishes his illness by using it as a source of philosophical reflection on the twofold nature of modern medicine, the meaning of success and acceptance, and the true nature of that capricious creature we call I.
  living with parkinson's disease book: Dancing with Parkinson's Sara Houston, 2019 This book explores the experience and value of dancing for people living with the neurodegenerative disorder Parkinson's disease. Linking aesthetic values to wellbeing, Sara Houston articulates the importance of the dancing experience for those with Parkinson's, and argues that the benefits of participatory dance are best understood through the experiences, lives, needs, and challenges of people living with Parkinson's who have chosen to dance. Presenting personal narratives from a study that investigates the experience of people with Parkinson's who dance, intertwined with the social and political contexts in which the dancers live, this volume examines the personal and systemic issues as well as the attitudes and identities that shape people's relationship to dance. Taking this new primary research as a starting point, Dancing with Parkinson's builds an argument for how dance becomes a way of helping people live well with Parkinson's. This book explores the experience and value of dancing for people living with the neurodegenerative disorder Parkinson's disease. Linking aesthetic values to wellbeing, Sara Houston articulates the importance of the dancing experience for those with Parkinson's, and argues that the benefits of participatory dance are best understood through the experiences, lives, needs and challenges of people living with Parkinson's who have chosen to dance. Presenting personal narratives from a study that investigates the experience of people with Parkinson's who dance, intertwined with the social and political contexts in which the dancers live, this volume examines the personal and systemic issues as well as the attitudes and identities that shape people's relationship to dance. Taking this new primary research as a starting point, Dancing with Parkinson's builds an argument for how dance becomes a way of helping people live well with Parkinson's.
  living with parkinson's disease book: Perseverance Tim Hague, 2020-01-07 An inspiring story of beating the odds and learning to overcome--no matter what life hands you. After starting a family and flourishing in his career, Tim Hague was struck by misfortune. The irritating tremor in his foot turned out to be early onset Parkinson's disease. He was only 46 years old. But what seemed to be an end became a new beginning. Just three years later, Hague won the inaugural The Amazing Race Canada (with his son, Tim Jr., as his teammate). His remarkable life story shows that perseverance is not just a matter of willpower: it is a skill that can be learned and honed. And perseverance is the theme of his life. From the day he was born, Hague has gone from one struggle to another. Yet, remarkably, he doesn't have a trace of self-pity. In fact, he feels blessed. From his tough start in life as an unwanted mixed-race baby born in Texas in 1964, to his eventual move to the unforgiving climate of Winnipeg, Canada, to start a family under difficult circumstances, and his continuing battle with Parkinson's--Hague's life is a roadmap of perseverance. Parkinson's has forced him to retire early from the work he loves as a registered nurse. But as a healthcare professional, and now suffering from a challenging disease himself, Hague discusses living with Parkinson's like no one else could. He now works with charities to help promote Parkinson's awareness and his Live Your Best message. Drawing on his experience winning The Amazing Race, and referencing cutting-edge research and studies, Hague weaves a moving story of failure and success, outlining the elements of his philosophy that anyone can apply to their own lives, including: * The nature of luck: Luck comes to those who keep trying until the end--never stop until the race is over. * Find community: As a nurse, a husband and father, and a man living with Parkinson's, Hague knows better than most that we all need to ask for help sometimes, and that's a good thing. * Accept limits: By focusing on what we can do, we accomplish more than we ever thought possible. * Cease striving: We think of striving as a positive attribute, but all we end up doing is banging our heads against the wall. Have goals, but have fun. Do not create anxiety out of nothing and maintain perspective. * Live Your Best: No such thing as giving 110%--can only do your best. Inspirational and entertaining, Hague's message is both simple and profound: perseverance isn't just something a person has, or a trait we admire in others. Hague's book, like his life, is a guide to how we can all learn to persevere in the face of daily struggles--or even life-changing illness.
  living with parkinson's disease book: Parkinson Pete on LIving & Dying with Parkinson's Peter Beidler, 2020-05-12 Parkinson Pete on Living and Dying with Parkinson's Disease is a direct, honest, and sometimes funny assessment of what it can be like to face a life and a death with a neurodegenerative disease like Parkinson's. Most of the writers of the books Pete reviewed in Parkinson Pete's Bookshelves dealt exclusively with the easy early stages of the disease. Then they mumbled something about the need to keep hoping that a cure is just around the corner. Pete shares that hope, of course, while advising readers how to take charge of their own futures, cure or no cure.
  living with parkinson's disease book: Living with Parkinson's Disease K. Bizière, Matthias C. Kurth, 1997 Describes the nature of Parkinson's disease and the treatments that are available for its management.
  living with parkinson's disease book: Everything You Need to Know about Parkinson's Disease Lianna Marie, 2015-10-22 In this self-published work, the author answers the most important questions about Parkinson's disease.
  living with parkinson's disease book: Reverse Parkinson's Disease John Pepper, 2018-10-10 My Pd symptoms started in 1963 and they continued to get more numerous until I was finally diagnosed with Pd in 1992. As a result of doing certain exercise and taking a specific medication, my symptoms started to improve in 1994 and continued to improve until I was able to stop taking any further Pd medication in 2002. I have continued to live, medication-free, since then. I am now 82, at the time of publishing this book on Kindle, and enjoy a good quality of life, providing that I continue the exercise.
  living with parkinson's disease book: Living with Parkinson's Disease Michael Okun, Irene A. Malaty, Wissam Deeb, 2020 An optimistic guide from an expert author and the world authority on Parkinson's disease. Worldwide, there are more than 10 million people living with Parkinson's disease (PD). In the US alone, approximately one million Americans live with PD and approximately 60,000 more are diagnosed each year. Internationally renowned as both a neurologist and a leading researcher, Dr. Okun has been referred to as the voice of these patients and a world authority on Parkinson's disease. His positive and optimistic approach has helped countless people manage their symptoms and achieve happiness despite them. This approach, detailed in his new book, Living with Parkinson's Disease, is a critical resource for Parkinson's disease patients and their families. Presented in a friendly and easy-to-understand way, this book addresses PD-related issues and symptoms along with emerging therapies. In each chapter, Dr. Okun offers patients the necessary tools to manage their disease and to ultimately find joy and fulfilment in their lives.
  living with parkinson's disease book: SHAKEN, NOT STIRRED: Living with Parkinson's Disease Larry Linton, 2020-05-24 SHAKEN, NOT STIRRED: Living with Parkinson’s Disease is the story of a reluctant hero navigating the trauma of a life-altering diagnosis. After going through a long-term, debilitating stage of grief, Linton emerges to find life worth living and enjoying again. Read how simple changes Linton made to his daily life have improved his physical and mental health, his happiness, his life, and the lives of his family members, who stood bravely by as he waged his battle. Despite the seriousness of the subject, Linton shares inspiring stories and important information about Parkinson’s Disease in a surprisingly entertaining and engaging manner.
  living with parkinson's disease book: Living with Parkinson's Disease Kingston Theophilus, 2024-02-12 Living with Parkinson's Disease: A Comprehensive Guide for Patients and Caregivers is an essential manual that helps people negotiating the complexity of Parkinson's disease by providing insightful analysis, useful guidance, and kind support. This thorough guide, which tackles the many demands and difficulties experienced by patients and their caregivers, is written with clarity, empathy, and competence. It offers vital information on comprehending the disease, controlling symptoms, finding services, and improving quality of life. This book provides readers with the information and resources they need to face their Parkinson's journey with resilience and confidence, covering everything from the fundamentals of Parkinson's disease pathology and diagnosis to in-depth talks on treatment choices, medication management, and lifestyle changes. The content is enhanced by the perspectives of healthcare professionals, personal accounts from people with Parkinson's disease, and helpful advice for caregivers. Together, these sources provide a comprehensive understanding of the physical, emotional, and practical aspects of living with Parkinson's disease. Important subjects addressed in this thorough book include: Knowing the origins, signs, and course of Parkinson's illness Exploring medical assessments, diagnostic testing, and treatment techniques navigating alternative treatments, surgery, and medication management embracing nutritional concerns, exercise routines, and lifestyle recommendations for optimal health addressing coping mechanisms, emotional health, and patient and caregiver support options Future planning, legal considerations, and Parkinson's disease patients' advance directives Living with Parkinson's Disease is an indispensable tool for everyone impacted by the condition, providing direction, motivation, and optimism for coping well with this difficult ailment. It is easily accessible, educational, and motivating. Whether you are newly diagnosed, managing Parkinson's symptoms, or caring for a loved one with the illness, this book gives the knowledge and support you need to manage your Parkinson's journey with courage, resilience, and dignity
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